The Alpha-1 Research Registry is for individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers.
Coordination of Rare Diseases at Sanford Research (CoRDS) is an international patient registry for 7,000 rare diseases.
The DHPS Registry is an online registry for patients with deoxyhypusine synthase (DHPS), which is involved in the synthesis of an unusual amino acid, hypusine.
The FARE Food Allergy Patient Registry is an online registry for individuals and families living with food allergies.
The Invitae Parent Insights Network (PIN) connects participants with advocacy organizations, clinicians, researchers, and others.