Making Informed Decisions

These organizations are trusted to provide accurate and up to date information, and we add to the list continuously.  There are many other sites we also use that can help you.  If you have questions about any sites, please contact us.

Patient Oriented Organizations

Global Genes

ELF, the Every Life Foundation

Genetic Alliance

NORD, the National Organization for Rare Disorders

The Alliance for Cancer Gene Therapy

Academic & Research Societies

ASGCT, American Society of Gene & Cell Therapy

ISCT, International Society for Cell & Gene Therapy

Information for People Considering Clinical Trials

CISCRP – Center for Information and Study on Clinical Research Participation